What is Sanfilippo Syndrome | Cure Sanfilippo Foundation
What is Sanfilippo Syndrome | Cure Sanfilippo Foundation
4 months ago
curesanfilippofoundation.org
54K views · 376 reactions | Sanfilippo Wing it on Reels | Facebook
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54K views · 376 reactions | Sanfilippo Wing it on Reels | Face…
54.6K views3 weeks ago
FacebookSanfilippo Wing it
145K views · 2.6K reactions | We hope that Sanfilippo syndrome will soon have approved treatments and can be added to newborn screening. Until then, we will keep advocating for doctors and parents to screen early because the earlier the diagnosis, the better the outcome. #sanfilipposyndrome #newbornscreening #diagnosis | Saving Sadie Rae: Cure Sanfilippo | Facebook
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145K views · 2.6K reactions | We hope that Sanfilippo syndrome wil…
80.4K views3 weeks ago
FacebookSaving Sadie Rae: Cure Sanfilippo
This kid is impossible to buy for because of Sanfilippo syndrome. Our go-to gifts are chewies, adaptive clothes, and iPad cases (because she frequently drops them). We used to like giving her experiences, but those increasingly seem to overwhelm her these days. Caregivers of kids with Sanfilippo or similar conditions, what gifts do you give? #sanfilipposyndrome #specialneeds #giftideas #savingsadierae | Saving Sadie Rae: Cure Sanfilippo
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This kid is impossible to buy for because of Sanfilippo syndrome. …
334.8K views6 months ago
FacebookSaving Sadie Rae: Cure Sanfilippo
5.6K views · 33 reactions | EPISODE #7: “A Close Look At Sanfilippo”...
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5.6K views · 33 reactions | EPISODE #7: “A Close Look At Sanfilippo”...
5.6K views2 weeks ago
FacebookCure Sanfilippo Foundation
1.1M views · 11K reactions | An eyeliner and eye wing stamp all in one tool. Pre Order NOW on sanfilippo-wingit.com | Sanfilippo Wing it | Facebook
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1.1M views · 11K reactions | An eyeliner and eye wing stamp all in …
1.2M views2 weeks ago
FacebookSanfilippo Wing it
Recognizing Early Symptoms of Sanfilippo Syndrome
Recognizing Early Symptoms of Sanfilippo Syndrome
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