One year on Trikafta: giving people with cystic fibrosis a 'fighting chance'
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One year on Trikafta: giving people with cystic fibrosis a 'fighting chance'
Dec 4, 2020
wgrz.com
It's official, I'm running the 2026 NEW YORK CITY MARATHON! This past year I finished Ironman Lake Placid, a 50 mile ultramarathon, the Austin Marathon, and ran 30 miles for my 30th birthday. I've never needed a reason to do hard things, but this time I have one. I am joining Brethe Team, a charity raising money for Cystic Fibrosis research. Honestly, I hardly knew anything about CF but I am learning. I do know that those living with CF fight to breathe everyday and I'm running this for them. My
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It's official, I'm running the 2026 NEW YORK CITY MARATHON! This past year I finished Ironman Lake Placid, a 50 mile ultramarathon, the Austin Marathon, and ran 30 miles for my 30th birthday. I've never needed a reason to do hard things, but this time I have one. I am joining Brethe Team, a charity raising money for Cystic Fibrosis research. Honestly, I hardly knew anything about CF but I am learning. I do know that those living with CF fight to breathe everyday and I'm running this for them. My
179 views1 month ago
TikTokryan_lav_
Mel Smith - Mel Smith Sings... For Cystic Fibrosis
Mel Smith - Mel Smith Sings... For Cystic Fibrosis
8.5M viewsNov 12, 2021
discogs.com
Giving Tuesday is just one week away – but you don’t have to wait to make a difference. 💙 Donate early and your gift will be matched, helping fuel life-changing research and care for Canadians like Lorna who lives with cystic fibrosis. Start your Giving Tuesday impact now: https://heyor.ca/OAtKSE | Cystic Fibrosis Canada
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Giving Tuesday is just one week away – but you don’t have to wait to make a difference. 💙 Donate early and your gift will be matched, helping fuel life-changing research and care for Canadians like Lorna who lives with cystic fibrosis. Start your Giving Tuesday impact now: https://heyor.ca/OAtKSE | Cystic Fibrosis Canada
290 views5 months ago
FacebookCystic Fibrosis Canada
We will not stop until a cure is found for all people with cystic fibrosis. Help add tomorrows by giving today. | Cystic Fibrosis Foundation
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We will not stop until a cure is found for all people with cystic fibrosis. Help add tomorrows by giving today. | Cystic Fibrosis Foundation
93.3K viewsDec 14, 2017
FacebookCystic Fibrosis Foundation
The recent news that Australians living with cystic fibrosis will now have more affordable access to a new medication is a huge step forward. This new treatment is Alyftrek. It is taken once a day and is giving people more choice in their treatment. Its listing on the Pharmaceutical Benefits Scheme means the cost has dropped from around $250,000 a year to only $25 dollars per script, or $7.70 for concession holders. This update brings even more hope and flexibility for Australians living with cy
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The recent news that Australians living with cystic fibrosis will now have more affordable access to a new medication is a huge step forward. This new treatment is Alyftrek. It is taken once a day and is giving people more choice in their treatment. Its listing on the Pharmaceutical Benefits Scheme means the cost has dropped from around $250,000 a year to only $25 dollars per script, or $7.70 for concession holders. This update brings even more hope and flexibility for Australians living with cy
48.4K views2 months ago
FacebookCystic Fibrosis Australia
The long breath: Medical advancements giving cystic fibrosis patients a fuller life
The long breath: Medical advancements giving cystic fibrosis patients a fuller life
Sep 2, 2024
interestingengineering.com
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At just seven years old, Sienna from British Columbia is already making waves in community fundraising. 🌊 Watch this video from Sienna and her father, Kevin, to hear about how they’re raising funds for CF and how you can too. Interested in starting your own fundraiser? Click here: https://heyor.ca/O74J3J | Cystic Fibrosis Canada
14.5K views6 months ago
FacebookCystic Fibrosis Canada
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Life with Cystic Fibrosis isn’t just tough on the harder days - it’s every day. Behind the smiles and strength, there are constant pressures that many never see... “People living with Cystic Fibrosis will have additional costs, including keeping their homes warm to prevent lung infections, needing an extra fridge to store medication, and running vital medical equipment.” These aren’t occasional expenses - they’re daily essentials for staying well 🤒 At The Leanne Fund, we have first-hand experie
289 views5 months ago
FacebookThe Leanne Fund
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"I don't do anything, I just try to stay alive” In the Cystic Fibrosis unit, a Multi-Disciplinary Team led by Professor Barry Plant is discussing a new drug that might save Kims life. #AnyGivenDay | Wednesday at 9.35pm | RTÉ Player
5.9K views3 months ago
FacebookRTÉ Player
She fought cystic fibrosis for more than 20 years. Now a NJ director is sharing her story
Jan 20, 2022
app.com
Cystic fibrosis - Symptoms and causes
Dec 7, 2024
mayoclinic.org
‘It’s like a miracle’: new Cystic Fibrosis drug breathes hope into Utah’s first prescribed patient after just one week
Nov 11, 2019
fox13now.com
1:28
After being diagnosed with cystic fibrosis at six weeks old, Harry Coffey has forged a successful career as a jockey. He's committed to giving back by telling his story, and supporting the Good Friday Appeal as a Victoria Racing Club ambassador. Racegoers can donate to the cause at Flemington on Super Saturday and Australian Cup Day this month. #melbourne | Herald Sun
3.6K viewsMar 4, 2024
FacebookHerald Sun
Cystic fibrosis took Mallory Smith's life, but her memoir lives on
11 months ago
stanford.edu
3:08
Despite being born with cystic fibrosis, Brigette was able to live a mostly normal and healthy childhood. But, by the time she was 18, infections and hospital visits became more and more frequent. Brigette was eventually given 1-2 years to live unless she received a double lung transplant. Watch her remarkable journey now. #WeAreTGH Brigette is now one of more than 12,000 patients given a life-saving transplant at our TGH Transplant Institute. This #DonateLifeMonth, please consider giving the gi
5K viewsApr 19, 2023
FacebookTampa General Hospital
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Every September 8 marks #WorldCysticFibrosisDay—a day to shine a light on a condition that affects thousands across the globe and to advocate for early diagnosis, access to treatment, and awareness. 💜Claire was adamant about showing the world that living with cystic fibrosis didn’t mean giving up on life—it meant embracing it fully. Claire often shared how, because of her CF, she gained a unique perspective: challenges could be the very thing that shapes a beautiful, meaningful life. She wanted
14.9K views8 months ago
FacebookClaire's Place Foundation, Inc.
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🎉 Ten years ago, Geneviève and Sébastien kicked off their first fundraiser in support of Cystic Fibrosis Canada. Next year, they’ll celebrate a decade of giving with a new adventure, Défibrose 2026: The Kenya Experience. 💙 Join passionate fundraisers like Genevieve and Sebastien by registering your own event today. CF Canada is also marking a big milestone this year: our 65th anniversary and in honour of it, you can win exclusive anniversary prizes! When you register and start fundraising, you
449 views6 months ago
FacebookCystic Fibrosis Canada
Giving Back Breath: How an Iowa doctor led a breakthrough cystic fibrosis treatment | Hossam Aboul-Magd
1.2K views1 month ago
linkedin.com
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Living with Cystic Fibrosis
418.1K viewsMay 9, 2011
YouTubehollyrosanna
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Meet Ryan, his passion for gaming helps him connect to other people with cystic fibrosis. We are hugely grateful to BBC Children in Need for funding our #MyPassionKeepsMeWell series and empowering young people with CF to share their stories: https://bit.ly/3h7Yo3u | Cystic Fibrosis Trust
3.2K viewsAug 17, 2020
FacebookCystic Fibrosis Trust
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Cystic Fibrosis Newborn Screening | Cincinnati Children's
NATIONALLY RATED HOSPITAL
About this channel
YouTubeCincinnati Children's
0:34
WATCH: Zethu, Tengetile Nompilo Dlamini’s sister, giving a moving eulogy at Nompilo's memorial service at Ngwane Park Free Evangelical Assemblies. Nompilo was an inspiration to all who knew her, as she bravely faced the challenges of Cystic Fibrosis and refused to let it define her life. She will be remembered for her positive spirit and her determination to live life to the fullest. May she rest in peace, knowing that she touched the lives of so many people during her time on earth. May her mem
14.2K viewsNov 10, 2023
FacebookTimes of Eswatini
48:07
VLC 2026 | Cystic Fibrosis Experience Panel: CF Is More Than CF
132 views4 weeks ago
YouTubeCystic Fibrosis Foundation
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How Running Transformed My Life with Cystic Fibrosis
13.5K views2 months ago
TikToksophiegraceholmes
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Ariel Kapp 🦋🌈 on Instagram: "Cystic fibrosis means Piper’s lungs need daily help clearing what her body can’t move on its own. The vest shakes her chest to loosen buildup and her nebulizer medication helps open her airways and protect her lungs. It’s not optional. It’s not occasional. It’s every day. But what you’re seeing here isn’t just treatment. It’s independence. It’s resilience. It’s a three-year-old little girl learning how strong she already is. Some days this life feels heavy. Watchin
322.7K views2 months ago
Instagramarielmariah913
Teen With Cystic Fibrosis Inspires in OneRepublic's New "I Lived"...
Jun 17, 2022
cysticfibrosisnewstoday.com
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Ryan's Story - a Jeans for Genes Day film
94K viewsAug 14, 2012
YouTubeJeansforGenesUK
28:02
The Science of Healing: Living With Cystic Fibrosis
7.3K viewsJul 27, 2021
YouTubeSLUCare
21:32
Real Families: Inspiring Stories of Medical Miracles
460.7K viewsFeb 1, 2017
YouTubeReal Families
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