Day 4 of #12daysofchristmasgiving meet 6 year old Martin from Alajuela, Costa Rica. Costa Rica has most CLN6 Batten disease patients of any country. Angelica Lopez and her family helped start Fundación Batten Costa Rica to help partner with our foundation by to reach viable treatments for all the children living with Batten CLN6. It is incredibly hard for the people of Costa Rica to gain access to researchers, neurologists and treatments in the USAbut we are working hard to change that and treat
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Day 4 of #12daysofchristmasgiving meet 6 year old Martin from Alajue…
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