News

How a 1981 episode of 'Mister Rogers' Neighborhood' opened kids' eyes to one boy's story — and now inspires a new character ...
Jeff Erlanger was a longtime fan of Fred Rogers before appearing on his show, and the two became friends for life ...
Ultragenyx's strong revenue growth, diverse streams, and late-stage pipeline make it a standout in rare disease and gene ...
The South African comedy industry’s biggest stars gathered at the 12th Annual Savanna Comics' Choice Comedy Awards, where the best of Mzansi’s comedy scene was celebrated. The ceremony was a showcase ...
Living with two rare genetic disorders — Osteogenesis Imperfecta and Larsen-like Syndrome — Moriarty faces daily challenges due to brittle bones and soft cartilage. However, her condition hasn't ...
The payments come from the disability benefit Personal Independence Payment (PIP), which is paid to people with long-term ...
Osteogenesis imperfecta also has many types with varying levels of symptoms caused. It is important to know more about this ...
More than one million people will receive between £29.20 and £187.45 each week over the new financial year through PIP or Adult Disability Payment for musculoskeletal conditions.
National Policy for Rare Diseases 2021 addresses diagnosis and treatment, categorizing diseases and advocating for affordable ...
In a world where love can overcome barriers, Pamela Chavez and Jay Manuel exemplify a relationship that thrives despite significant health challenges. As a couple navigating life with brittle bone ...
Osteogenesis imperfecta (OI) is probably the most common genetic form of fracture predisposition. The term OI encompasses a broad range of clinical presentations that may be first apparent from ...
Showcasing only affluent, independent disabled people fuels misconceptions that disability benefits are unnecessary.