One of the hardest parts of working full-time with cystic fibrosis is the quiet exhaustion of navigating systems and expectations that were never designed for chronic illness.
I lived for decades struggling to breathe, adapting my life around what I thought were severe allergies. Then I was finally diagnosed with cystic fibrosis. With proper treatment and perseverance, I’ve ...
The Western New York Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers Buffalo, Rochester, and the surrounding areas. Volunteers are the key to our success and the lifeblood ...
It is important to always clean and disinfect your nebulizer because you can breathe in germs through your nebulizer and risk developing a lung infection. 3 min read Nebulizers are medical devices ...
The Cystic Fibrosis Foundation is deeply committed to ensuring that all people with CF can access the high-quality, specialized care they need to lead long, healthy lives. For many people with CF, ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
I was born in Germany, and when I was 6 months old, my mother flew me to Washington, D.C. where I was diagnosed with cystic fibrosis. Growing up, I went to school just like any other student, but of ...
Born in Missouri and raised in Texas, Luanne was diagnosed with cystic fibrosis at the age of 14. She underwent a successful double-lung transplant in 2011. She has two graduate degrees, including a ...
I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...
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