AUSTIN, Texas, March 2, 2021 /PRNewswire/ -- Beyond Batten Disease Foundation (BBDF) is pleased to announce an agreement with Actelion Pharmaceuticals Ltd, a Janssen Pharmaceutical Company of Johnson ...

A fundraiser for a rare neurodegenerative disorder affecting a four-year-old girl with a connection to racing was highlighted during the 2025 Indianapolis 500. Helen’s Pink Sky Foundation was featured ...

LYON, FRANCE and AUSTIN, TX / ACCESS Newswire / May 13, 2025 / Theranexus, a biopharmaceutical company developing drug candidates for rare neurological diseases, and the Beyond Batten Disease ...

EDEN PRAIRIE, MN / ACCESS Newswire / April 9, 2025 / Today, the Born and Schneider family announced the launch of Helen's Pink Sky Foundation, a new nonprofit dedicated to accelerating research, ...

INDIANAPOLIS (WISH) — Helen’s Pink Sky Foundation is hosting a lemonade stand event to raise awareness and funds for Batten disease research. The event, inspired by Helen’s upcoming fourth birthday, ...

Helen’s Pink Sky Foundation is committed to advocacy, research, and family support in the fight against Batten Disease (CLN2). Inspired by four-year-old Helen Born, the foundation funds groundbreaking ...

Doctors told Gordon Gray his daughters would not live to see their 12th birthday — -- The Hollywood couple who started a foundation to quickly fund research to find a cure for Batten Disease, ...

One early morning not long ago, Scottsdale-based golf course architect David Kahn and his wife, Karen, were woken by their 10-year-old daughter Makenzie calling to them from the hallway outside their ...